Other Names for this Disease
- Coarse, dry, lusterless hair which breaks off easily
- Twisted hair
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.
On this page
In acquired pili torti, treatment involves stopping the exposure to the causative agent (e.g., to oral retinoids) or condition (e.g., improving diet). Currently we are not aware of new therapies for treatment for genetic cases of pili torti, however hair may become less fragile with age. It is generally recommended that people with pili torti try to avoid trauma to the hair. Suggestions include, sleeping on a satin pillowcase, avoiding excessive grooming, braiding, heat treatments, dying and coloring, reducing exposure to sunlight (wear a hat), using gentle shampoos diluted in warm water, adding conditioner to freshly washed hair, avoiding use of a hair dryer (or using it on cool setting), and avoiding oral retinoids (e.g., isotretinoin, acitretin) if possible. Some individuals with pili torti choose to wear a wig.
Last updated: 2/24/2011
- Defects of the hair shaft. DermNet NZ. 2010; http://www.dermnetnz.org/hair-nails-sweat/hair-shaft-defects.html. Accessed 2/23/2011.
- Gelles LN. Picture of the month. Pili torti. Arch Pediatr Adolesc Med. 1999 Jun; http://archpedi.ama-assn.org/cgi/content/full/153/6/647. Accessed 2/23/2011.
- Finding Treatment Information - A video developed by GARD Information Specialists that explains how you can find information about treatment for a rare disease.
- The Centers for Mendelian Genomics program is working to discover the causes of rare genetic disorders. For more information about applying to the research study, please visit their website.