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Diseases

Genetic and Rare Diseases Information Center (GARD)

Kindler syndrome


Other Names for this Disease
  • Poikiloderma, hereditary acrokeratotic
  • Bullous acrokeratotic poikiloderma of kindler and weary
  • Poikiloderma, congenital, with bullae, weary type
  • Congenital bullous poikiloderma
  • Poikiloderma of Kindler
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

News & Events


ORDR Co-Sponsored Conferences

  • 2016 Rare Disease Day at NIH, Monday, February 29, 2016
    Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
    Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.

  • EB2015: DEBRA International Symposium on Epidermolysis Bullosa, Sunday, May 03, 2015 - Wednesday, May 06, 2015
    Location: Atlanta, GA
    Description: <p>Brett Kopelan, Executive Director of DEBRA of America, is proud to announce that the breadth of expertise and topics covered in the 'bench to bedside' programme has resulted in the National Institutes of Health (NIH) agreeing to provide funding for the conference. <br /> <br /> The conference will showcase the incredible strides over the last 3 years in the development of therapies and in the understanding of the disease in general. Speakers will focus not only on the basic science, but also on the translational work, new approaches to therapy, symptom relief, as well as clinical trial progress. </p> <p>While the conference is by invitation only, we are soliciting many up and coming researchers to present their work to the more seasoned EB community in hopes of having them continue the progress we have achieved. Mr. Kopelan will be giving an update in September at the DEBRA International congress in London. </p>

Other Names for this Disease
  • Poikiloderma, hereditary acrokeratotic
  • Bullous acrokeratotic poikiloderma of kindler and weary
  • Poikiloderma, congenital, with bullae, weary type
  • Congenital bullous poikiloderma
  • Poikiloderma of Kindler
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.