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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Proud syndrome


Other Names for this Disease
  • ACC with abnormal genitalia
  • Corpus callosum, agenesis of, with abnormal genitalia
  • Micrencephaly - corpus callosum agenesis - abnormal genitalia
  • New X-linked syndrome with seizures, acquired micrencephaly, and agenesis of the corpus callosum
  • Proud Levine Carpenter syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • National Organization of Disorders of the Corpus Callosum
    PMB 363
    18032-C Lemon Drive
    Yorba Linda, CA 92886
    Telephone: 714-747-0063
    Fax: 714-693-0808
    E-mail: info@nodcc.org
    Website: http://www.nodcc.org

  • The Arc of the United States
    1010 Wayne Avenue, Suite 650
    Silver Spring, MD 20910
    Toll-free: (800) 433-5255
    Telephone: (301) 565-3842
    Fax: (301) 565-3843 or (301) 565-5342
    E-mail: info@thearc.org
    Website: http://www.thearc.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • ACC with abnormal genitalia
  • Corpus callosum, agenesis of, with abnormal genitalia
  • Micrencephaly - corpus callosum agenesis - abnormal genitalia
  • New X-linked syndrome with seizures, acquired micrencephaly, and agenesis of the corpus callosum
  • Proud Levine Carpenter syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.