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Diseases

Genetic and Rare Diseases Information Center (GARD)

Schwannomatosis


Other Names for this Disease
  • Neurilemmomatosis congenital cutaneous
  • Congenital cutaneous neurilemmomatosis
  • Neurofibromatosis type 3
  • NF3
Related Diseases
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News & Events


NCATS Co-Sponsored Conferences

  • American Society of Gene & Cell Therapy (ASGCT) 19th Annual Meeting, Wednesday, May 04, 2016 - Saturday, May 07, 2016
    Location: Washington, DC
    Description: Save the date and plan to head to Washington, DC on May 4-7, 2016, for the premiere gene and cell therapy conference in the world. Taking place at the Marriott Wardman Park Hotel, the ASGCT 19th Annual Meeting will feature ground breaking clinical trial results, cutting edge technology advancements, social networking events, and much more. Join over 1,900 of the worlds top gene and cell therapy professionals for four full days of educational offerings including plenary lectures given by Dr. David R. Liu and 2015 Japan Prize recipients, Dr. Alain Fischer, and Dr. Theodore Friedmann.

  • Developing Endpoints to Facilitate Clinical Trials in Rare Diseases, Tuesday, November 17, 2015 - Friday, November 20, 2015
    Location: Bethesda, MD
    Description: The Response Evaluation in Neurofibromatosis and Schwannomatosis (REiNS) International Collaboration holds a winter annual conference each year to develop and to discuss novel outcome measures for clinical trials of neurofibromatosis and schwannomatosis, a group of related tumor suppressor syndromes. The annual winter conference has been very successful in stimulating international collaboration among the many different specialists involved in the treatment of these rare conditions. The 2015 conference theme is to develop consensus-driven outcome measures for clinical trials in patients with rare disease such as neurofibromatosis and schwannomatosis.

  • Children's Tumor Foundation 2014 Neurofibromatosis (NF) Conference, Saturday, June 07, 2014 - Tuesday, June 10, 2014
    Location: Washington , D.C.
    Description: In order to stimulate exchange between basic scientists and clinical investigators, a number of sessions will be organized to discuss preclinical models and findings side by side with clinical findings and current management in patients. The hope is that this exchange will promote the translation of preclinical findings into clinical trials. Moreover, invited speakers outside of the NF community will add to the scientific diversity and stimulate discussions and promote new collaborations.

Other Names for this Disease
  • Neurilemmomatosis congenital cutaneous
  • Congenital cutaneous neurilemmomatosis
  • Neurofibromatosis type 3
  • NF3
Related Diseases
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.