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Diseases

Genetic and Rare Diseases Information Center (GARD)

Tetra-amelia syndrome


Other Names for this Disease
  • Tetra-amelia
  • Tetra-amelia, autosomal recessive
  • Tetraamelia, autosomal recessive
  • Total Amelia
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Reach: The Association for Children with Hand or Arm Deficiency
    P.O. Box 54
    Helston Cornwall, Intl TR13 8WD
    United Kingdom
    Telephone: 0845 1306225
    Website: http://www.reach.org.uk

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • Tetra-amelia
  • Tetra-amelia, autosomal recessive
  • Tetraamelia, autosomal recessive
  • Total Amelia
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.