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Diseases

Genetic and Rare Diseases Information Center (GARD)

Rett syndrome


Other Names for this Disease
  • Autism, dementia, ataxia, and loss of purposeful hand use
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Your Question

I am a nurse, and I have a patient that presents with some of the classic signs of Rett syndrome. I want to locate a specialist in Rett syndrome genetics. Could your agency send me a list of practicing physicians and clinics with expertise in this area?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

Could your agency send me a list of practicing physicians and clinics with expertise in Rett syndrome?

The Information Center does not maintain lists of physicians who specialize in any particular disorder and cannot provide recommendations for medical services. However, Rettsyndrome.org maintains a list of clinics specializing in Rett syndrome on their Web site. This organization also lists state resources which may help you locate Rett syndrome specialists in your area. 

Rettsyndrome.org
4600 Devitt Drive
Cincinnati, OH 45246
Toll-free: 1-800-818-7388
Telephone: 513-874-3020
Fax: 513-874-2520
E-mail: admin@rettsyndrome.org
Web site: http://www.rettsyndrome.org/

Additional resources that can help you locate genetics clinics are listed in the Living With section of our Rett syndrome web page.
Last updated: 4/25/2016
Other Names for this Disease
  • Autism, dementia, ataxia, and loss of purposeful hand use
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.