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Diseases

Genetic and Rare Diseases Information Center (GARD)

Albinism


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Treatment

Newline Maker

How might albinism be treated?

The goal of treatment is to address the symptoms present in each individual. People with albinism should protect their skin and eyes from the sun. This can be done by:[1][2] 

  • avoiding prolonged exposure to the sun,
  • using sunscreen with a high SPF rating (20 or higher),
  • covering up completely with clothing when exposed to the sun, and
  • wearing sunglasses with UV protection.
Individuals with vision problems may need corrective lenses. They should also have regular follow-up exams with an ophthalmologist. In rare cases, surgery may be needed. Individuals with albinism should also have regular skin assessments to screen for skin cancer or lesions that can lead to cancer.[3]
Last updated: 5/24/2016

References
  1. Haldeman-Englert C, Zieve D. Albinism. MedlinePlus. October 27, 2015; https://www.nlm.nih.gov/medlineplus/ency/article/001479.htm.
  2. Information Bulletin - What is Albinism?. NOAH. 2015; http://www.albinism.org/site/c.flKYIdOUIhJ4H/b.9253761/k.24EE/Information_Bulletin__What_is_Albinism.htm.
  3. Albinism. Mayo Clinic. April 19, 2014; http://www.mayoclinic.org/diseases-conditions/albinism/basics/definition/con-20029935.


Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Albinism. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.