- Alport syndrome, X-linked
- Congenital hereditary hematuria
- Hemorrhagic familial nephritis
- Hemorrhagic hereditary nephritis
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ORDR Co-Sponsored Conferences
2015 Collagen Gordon Research Conference and Gordon Research Seminar, Sunday, July 12, 2015 - Friday, July 17, 2015
Location: New London, NH
Description: The 2015 Collagen GRC program will include invited and platform presentations as well as posters on (a) new data and concepts about the genetics, chemistry, biology and pathology of collagens; (b) advances in closely related areas of research, such as cell-matrix interactions, developmental biology and diseases of connective tissues, and bioengineering, that are relevant to the collagen field; (c) new and emerging technologies and approaches that may be applied to the collagen field.
The Alport Syndrome Symposium for Physicians, Researchers, and Families, Saturday, August 28, 2010
Location: New York
Description: The goals of this symposium were to (1) bring together an international group of Alport syndrome researchers with affected patients and families; (2) provide clinician scientists, basic researchers, pediatric nephrologists, and families with the most recent information on the genetics, clinical features, pathogenesis, diagnosis, and treatment of Alport syndrome; (3) attract junior investigators and trainees to Alport syndrome research; (4) build collaborations among patients and families, clinicians, and researchers that will promote effective recruitment for clinical trials; and (5) educate and empower patients and families through interaction with many of the foremost clinician scientists and basic investigators in the field. The symposium aimed to generate enthusiasm and support for clinical trials of Alport syndrome therapies as well as effective recruitment strategies.