- Primary systemic amyloidosis
- Amyloidosis AL
- Light chain amyloidosis
- Systemic AL amyloidsis
- Primary AL amyloidosis
- Hereditary amyloidosis
- Secondary glomerular disease
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ORDR Co-Sponsored Conferences
2016 Rare Disease Day at NIH, Monday, February 29, 2016
Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.
XIV International Symposium on Amyloidosis , Sunday, April 27, 2014 - Friday, May 02, 2014
Location: Indianapolis, Indiana
Description: One important goal is to foster interactions between investigators who do not meet regularly outside of this event. Through this conference, experts can share unpublished scientific and clinical information about rare diseases that are hard to treat. A second crucial goal is to stimulate interest in a new generation of investigators by providing generous support for at least 10 junior-level researchers to attend the meeting, giving out awards for the most promising clinical research, the best poster, and the best oral presentation by young investigators, and providing childcare options.
Systemic Amyloidosis Focus Group Workshop, Tuesday, June 20, 2006
Location: Marriott Hotel and Conference Center, Bethesda, MD
Description: The amyloidoses contain a large group of disorders that have in common the presence of insoluble protein deposits in tissues. Most amyloidoses are diffuse, that is, multisystemic. Treatments vary for any one amyloidosis, and treatments range from anti-inflammatory treatment, dialysis, or chemotherapy followed by stem cell replacement to reduce the levels of monoclonal immunoglobulin to organ transplantation, particularly liver and kidneys. ORD and a broad-based NIH planning group developed steps needed for a small, comprehensive conference with invited experts to identify scientific needs and opportunities and to provide input into developing a draft research plan. Participants considered recommendations from the scientific conferences held in 2005 and provided advice on a comprehensive, detailed research and treatment plan for the amyloidoses.