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Diseases

Genetic and Rare Diseases Information Center (GARD)

Al Gazali Sabrinathan Nair syndrome


Other Names for this Disease
  • Osteogenesis imperfecta retinopathy seizures intellectual deficit
  • Al Gazali-Nair syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Research

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Patient Registry

  • The Brittle Bone Disorders Consortium (BBD) is an integrated group of academic medical centers, patient support organizations, and clinical research resources dedicated to conducting clinical research on Osteogenesis Imperfecta (OI). The goal of the consortium is to learn more about the disease, develop therapies, and to inform the public about the latest research and information about OI. The BBD has a contact registry for patients who wish to be contacted about clinical research opportunities and updates on the progress of the research projects.

    For more information on the registry see: https://www.rarediseasesnetwork.org/registry/index.htm
Other Names for this Disease
  • Osteogenesis imperfecta retinopathy seizures intellectual deficit
  • Al Gazali-Nair syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.