Neuronal ceroid lipofuscinosis 3
Other Names for this Disease
- Juvenile neuronal ceroid lipofuscinosis
- Vogt Spielmeyer disease
- Spielmeyer Sjogren disease
- CLN3 disease, juvenile
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- ClinicalTrials.gov lists trials that are studying or have studied Neuronal ceroid lipofuscinosis 3. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- The Lysosomal Disease Network is a team of doctors, nurses, research coordinators, and research labs throughout the U.S., working together to improve the lives of people with this condition through research. The Lysosomal Disease Network has a registry for patients who wish to be contacted about clinical research opportunities.
National Batten Disease Registry
Contact: K. Wisniewski M.D., Ph.D.
Department of Neurobiology
NYS Institute for Basic Research
1050 Forest Hill Road
Staten Island, NY 10314
Telephone: 718-494-0600; 718-494-5202