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Genetic and Rare Diseases Information Center (GARD)

Charcot-Marie-Tooth disease

Your Question

I am trying to find a doctor in my area that knows something about pain management for my disease.

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

How can I find a specialist for Charcot-Marie-Tooth disease in my area?

The Charcot-Marie-Tooth Association (CMTA) has a "Resource Search" section on its Web site which can be used to find physicians and other state and national resources. It also has extended search options which can be used to narrow down your search to a specified distance from a particular zip code. To perform a search on the CMTA's Web site, click here.

The Muscular Dystrophy Association (MDA), which offers resources and support for a wide range of muscle diseases including Charcot-Marie-Tooth disease, has a "Zip Code Locator" on its Web site for information about local MDA programs and services. The MDA's 200 local offices serve every community in the United States through a vast program of clinics and other resources. To perform a search on the MDA's Web site, click here.

The Neuropathy Association has a "Physicians Directory" that lists neurologists and other physicians with expertise or expressed interest in caring for patients with peripheral neuropathy. This list is provided by The Neuropathy Association as a service to its members who have difficulty in locating a physician in their area who is knowledgeable about peripheral neuropathy and neuropathy treatment options. To search The Neuropathy Association's Physician Directory, click here.

These resources are provided for informational purposes only and not as an endorsement of services. Individuals should use their own judgment when evaluating a healthcare professional.
Last updated: 10/19/2011

How can I find an expert who has knowledge and experience regarding a specific condition?

Although there is no list of experts for rare diseases, a fact sheet is available on our Web site with tips for finding healthcare professionals and researchers who have experience with a particular condition. Potential resources include patient advocacy groups, researchers conducting clinical trials, and authors of articles published in medical journals. Click here to view our fact sheet. If you are unable to locate an expert using these suggestions, please let us know.
Last updated: 9/29/2014
Other Names for this Disease
  • CMT
  • Hereditary motor and sensory neuropathy
  • HMSN
  • Charcot Marie Tooth disease
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