Other Names for this Disease
- Autosomal dominant hereditary axonal motor and sensory neuropathy
- Autosomal dominant hereditary demyelinating motor and sensory neuropathy
- Charcot Marie Tooth disease
- Charcot-Marie-Tooth hereditary neuropathy
- Autosomal dominant Charcot-Marie-Tooth disease type 2 with giant axons
- Autosomal dominant intermediate Charcot-Marie-Tooth disease type A
- Autosomal dominant intermediate Charcot-Marie-Tooth disease type B
- Autosomal dominant intermediate Charcot-Marie-Tooth disease type C
- Autosomal dominant intermediate Charcot-Marie-Tooth disease type D
- How to Find a Disease Specialist – A video developed by GARD Information Specialists that explains how you can find specialists for a rare disease.
- The Charcot-Marie-Tooth Association (CMTA) has a "Resource Search" section on its Web site, which can be used to find physicians and other state and national resources. It also has extended search options which can be used to narrow down your search to a specified distance from a particular zip code. To perform a resource search on the CMTA's Web site, click here.
- Many individuals want to know about healthcare professionals or researchers who have knowledge of their conditions. When a condition is rare, it can be difficult to find someone who has seen many cases. Although there is no list of experts in rare diseases, GARD's How to Find a Disease Specialist fact sheet provides several ways to identify healthcare professionals who have experience with a particular condition. Click on the link to access this resource and learn more.
- The Muscular Dystrophy Association can help you find a doctor who knows about Charcot-Marie-Tooth disease. Click on the link to search for specialty clinics nearest you.
- Services to enhance mobility and independent living are available in each community through the Muscular Dystrophy Association's local network of chapters and field offices. Click here to read more about this service.
- The Muscular Dystrophy Campaign provides information regarding the Joseph Patrick Trust which provides financial support for specialist equipment. Click on the link to read more about this trust.
- The Neuropathy Association has a Physicians Directory that lists neurologists and other physicians with expertise or expressed interest in caring for patients with peripheral neuropathy. This list is provided by The Neuropathy Association as a service to its members who have difficulty in locating a physician in their area who is knowledgeable about peripheral neuropathy and neuropathy treatment options. To search The Neuropathy Association's Physician Directory, click here.
- The Parent Technical Assistance Center Network provides a list of the Parent Training and Information Centers in each state. These centers are funded by the United States Department of Education to provide early intervention and special education information and training to parents of children with disabilities from birth to age 26. Click on the link to find the Parent Center in your state.