Other Names for this Disease
- Cowden disease
- Cowden's disease
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.
On this page
The National Breast Cancer Coalition/Fund
1101 17th Street Northwest
Washington, DC 20036
- DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
- PTEN World is an online discussion forum where members dealing with Cowden syndrome can share advice and support with other patients and caregivers.
- RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.
American Cancer Society
250 Williams Street NW
Atlanta, GA 30329