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Diseases

Genetic and Rare Diseases Information Center (GARD)

Diamond-Blackfan anemia


Other Names for this Disease
  • DBA
  • Anemia Diamond Blackfan type
  • Blackfan Diamond syndrome
  • BDS
  • Anemia congenital erythroid hypoplastic
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Research

Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Diamond-Blackfan anemia. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
  • Orphanet lists European clinical trials, research studies, and patient registries enrolling people with this condition. 

Patient Registry

  • The Diamond Blackfan Anemia Registry (DBAR) is a research organization dedicated to acquiring, analyzing and disseminating information on Diamond Blackfan anemia to affected individuals, their families and medical professionals.

    Diamond Blackfan Anemia Registry (DBAR)
    269-01 76th Avenue
    New Hyde Park, NY 11040
    Toll-free: 1-888-884-DBAR
    E-mail: eatsidaf@lij.edu
    Web site: http://www.dbar.org/
Other Names for this Disease
  • DBA
  • Anemia Diamond Blackfan type
  • Blackfan Diamond syndrome
  • BDS
  • Anemia congenital erythroid hypoplastic
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.