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Diseases

Genetic and Rare Diseases Information Center (GARD)

Severe generalized recessive dystrophic epidermolysis bullosa


Other Names for this Disease
  • Recessive dystrophic epidermolysis bullosa, severe generalized
  • RDEB, severe generalized
  • RDEB-sev gen
  • Autosomal recessive dystrophic epidermolysis bullosa, Hallopeau-Siemens type (formerly)
  • Autosomal recessive dystrophic epidermolysis bullosa generalisata gravis
Related Diseases
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Research

Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Severe generalized recessive dystrophic epidermolysis bullosa. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.

Patient Registry

  • The EBCare Registry is a resource for individuals and families affected by all forms of epidermolysis bullosa (EB) and qualified researchers working on approved EB research projects. The Registry itself is a research project and the data collected through the Registry will help characterize the condition of people living with all types of EB.
Other Names for this Disease
  • Recessive dystrophic epidermolysis bullosa, severe generalized
  • RDEB, severe generalized
  • RDEB-sev gen
  • Autosomal recessive dystrophic epidermolysis bullosa, Hallopeau-Siemens type (formerly)
  • Autosomal recessive dystrophic epidermolysis bullosa generalisata gravis
Related Diseases
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.