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Genetic and Rare Diseases Information Center (GARD)

Ehlers-Danlos syndrome

News & Events

ORDR Co-Sponsored Conferences

  • 2015 Collagen Gordon Research Conference and Gordon Research Seminar, Sunday, July 12, 2015 - Friday, July 17, 2015
    Location: New London, NH
    Description: The 2015 Collagen GRC program will include invited and platform presentations as well as posters on (a) new data and concepts about the genetics, chemistry, biology and pathology of collagens; (b) advances in closely related areas of research, such as cell-matrix interactions, developmental biology and diseases of connective tissues, and bioengineering, that are relevant to the collagen field; (c) new and emerging technologies and approaches that may be applied to the collagen field.

  • 25th Annual National Marfan Foundation Conference, Thursday, August 06, 2009 - Sunday, August 09, 2009
    Location: Mayo Clinic, Rochester, MN
    Description: Goals of this meeting were to (1) improve public awareness of Marfan syndrome; (2) improve patients’ knowledge of their condition and therapeutic options available to them (medical, social, and psychological); and (3) bring patients together with specialists from multiple disciplines including medical genetics, cardiology, cardiac surgery, orthopedics, and ophthalmology.

Other Names for this Disease
  • ED syndrome
  • EDS
  • Ehlers Danlos syndrome
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