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Diseases

Genetic and Rare Diseases Information Center (GARD)

Ehlers-Danlos syndrome


Organizations

Organizations Supporting this Disease

Social Networking Websites

  • RareConnect has an online community for patients and families with this condition so they can connect with others and share their experiences living with a rare disease. The project is a joint collaboration between EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders).

Organizations Providing General Support

  • Coalition for Heritable Disorders of Connective Tissue
    4301 Connecticut Avenue, Suite 404
    Washington, DC 20008-2304
    Telephone: 202-362-9599
    Fax: 202-966-8553
    E-mail: chdct@pxe.org
    Website: http://www.chdct2.org/index.htm

Other Names for this Disease
  • ED syndrome
  • EDS
  • Ehlers Danlos syndrome
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