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Diseases

Genetic and Rare Diseases Information Center (GARD)

Eosinophilia-myalgia syndrome


Other Names for this Disease
  • EMS
  • L-tryptophan induced EMS
  • Syndrome with inflammatory and autoimmune components that affect the skin, fascia, muscle, nerve, blood vessels, lung, and heart
  • Severe muscle pain and abnormally high eosinophils
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

News & Events


ORDR Co-Sponsored Conferences

  • 2016 Rare Disease Day at NIH, Monday, February 29, 2016
    Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
    Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.

  • Clinicopathologic Overlap Between Rare Eosinophilic Disorders: Implications for Clinical Trial Design, Wednesday, July 17, 2013
    Location: Oxford, England
    Description: The short-term goals of the workshop are: 1) to bring together a multidisciplinary group of clinician-scientists with expertise in rare eosinophilic disorders to discuss issues related to improved clinical trial design, including the utility of current diagnostic criteria and the validation of biomarkers of disease activity, 2) to continue fostering collaborative relationships between multidisciplinary clinical and basic science researchers interested in eosinophilic disorders, and 3) to provide a venue for establishing a formal multidisciplinary clinical subgroup of the IES. It is anticipated that the findings from this workshop will lead to improved design of multicenter clinical trials to assess the safety and efficacy of novel agents for the treatment of these disorders. Furthermore, establishing a formal clinical subgroup of IES will facilitate advocacy for new clinical trials for rare eosinophilic disorders.

  • 8th International Eosinophil Society’s Biennial Symposium, Saturday, July 13, 2013 - Wednesday, July 17, 2013
    Location: Oxford, England
    Description: IES Symposium organizers’ central goal is to provide a highly interactive, interdisciplinary forum for scientific exchange and collaboration amongst junior and senior scientists in the fields of allergy, immunology, hematology, and cancer in relation to the role of the eosinophil in health and disease.

  • Autoinflammation 2013: The Seventh International Congress of FMF and Autoinflammatory Diseases, Wednesday, May 22, 2013 - Sunday, May 26, 2013
    Location: Lausanne, Switzerland
    Description: The goals of this meeting include the exchange of clinical and scientific information regarding the autoinflammatory diseases. This is likely to result in improvements in the diagnosis and treatment of these diseases. Past Congresses have resulted in new scientific collaborations, development of registries for patients with specific autoinflammatory disorders, and the initiation of multicenter clinical trials.

Other Names for this Disease
  • EMS
  • L-tryptophan induced EMS
  • Syndrome with inflammatory and autoimmune components that affect the skin, fascia, muscle, nerve, blood vessels, lung, and heart
  • Severe muscle pain and abnormally high eosinophils
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.