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Genetic and Rare Diseases Information Center (GARD)

Epidermolysis bullosa


Clinical Trials & Research for this Disease

  • lists trials that are studying or have studied Epidermolysis bullosa. Click on the link to go to to read descriptions of these studies.

Patient Registry

  • The EBCare Registry is a resource for individuals and families affected by all forms of epidermolysis bullosa (EB) and qualified researchers working on approved EB research projects. The Registry itself is a research project and the data collected through the Registry will help characterize the condition of people living with all types of EB.
Other Names for this Disease
  • EB
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