Epidermolysis bullosa acquisita
- EB acquisita
- Acquired epidermolysis bullosa
- ClinicalTrials.gov lists trials that are studying or have studied Epidermolysis bullosa acquisita. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- The National Center for Research Resources (NCRR) in cooperation with Northwestern University has completed a clinical trial entitled 'Phase II Pilot Study of Extracorporeal Phototherapy for Epidermolysis Bullosa Acquisita' (study ID: 199/11928, NU-511; NLM Identifier NCT00004359). To view the study abstract click on the link above.
To locate information resulting from the completed study, you can either e-mail or call the National Library of Medicine (NLM) Customer Service. Include the title of the study, the study ID number, and the NLM Identifier, and a librarian at NLM can assist you in searching the medical literature for published results on the completed clinical trial.
National Library of Medicine Customer Service
- The EBCare Registry is a resource for individuals and families affected by all forms of epidermolysis bullosa (EB) and qualified researchers working on approved EB research projects. The Registry itself is a research project and the data collected through the Registry will help characterize the condition of people living with all types of EB.