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Diseases

Genetic and Rare Diseases Information Center (GARD)

Epidermolysis bullosa acquisita


Other Names for this Disease
  • EB acquisita
  • EBA
  • Acquired epidermolysis bullosa
Related Diseases
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Research

Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Epidermolysis bullosa acquisita. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
  • The National Center for Research Resources (NCRR) in cooperation with Northwestern University has completed a clinical trial entitled 'Phase II Pilot Study of Extracorporeal Phototherapy for Epidermolysis Bullosa Acquisita' (study ID: 199/11928, NU-511; NLM Identifier NCT00004359). To view the study abstract click on the link above.

    To locate information resulting from the completed study, you can either e-mail or call the National Library of Medicine (NLM) Customer Service. Include the title of the study, the study ID number, and the NLM Identifier, and a librarian at NLM can assist you in searching the medical literature for published results on the completed clinical trial.

    National Library of Medicine Customer Service
    Toll-free: 888-346-3656
    E-mail: custserv@nlm.nih.gov

Patient Registry

  • The EBCare Registry is a resource for individuals and families affected by all forms of epidermolysis bullosa (EB) and qualified researchers working on approved EB research projects. The Registry itself is a research project and the data collected through the Registry will help characterize the condition of people living with all types of EB.
Other Names for this Disease
  • EB acquisita
  • EBA
  • Acquired epidermolysis bullosa
Related Diseases
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.