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Diseases

Genetic and Rare Diseases Information Center (GARD)

Erdheim-Chester disease


Other Names for this Disease
  • ECD
  • Erdheim Chester disease
  • Lipoid granulomatosis
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

News & Events


ORDR Co-Sponsored Conferences

  • 2016 Rare Disease Day at NIH, Monday, February 29, 2016
    Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
    Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.

  • 2015 Erdheim Chester Disease Medical Symposium, Thursday, October 08, 2015
    Location: MD Anderson Cancer Center, Houston, TX
    Description: The 3rd Annual International ECD Medical Symposium will be held at MD Anderson in Houston, Texas on October 8. Medical professionals from around the world will come together to share the latest research findings related to ECD, discuss the care of patients, and develop collaborations to further research. All medical professionals with interest in ECD and ECD patients are encouraged to register.

  • Erdheim-Chester Disease International Medical Symposium, Thursday, September 18, 2014 - Thursday, September 18, 2014
    Location: Building 45, NIH Campus, Bethesda, MD
    Description: The goals of the symposium will be to facilitate collaboration among the international ECD medical community that will work toward: (1) Sharing knowledge across specialties, (2)Developing standard treatment protocols, and (3)Implementing cross-institutional scientific studies

  • Third International Meeting on Genetic Syndromes of the Ras/MAPK Pathway , Friday, August 02, 2013 - Sunday, August 04, 2013
    Location: Renaissance Orlando at SeaWorld, Orlando, FL

Other Names for this Disease
  • ECD
  • Erdheim Chester disease
  • Lipoid granulomatosis
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.