Your browser does not support javascript:   Search for gard hereSearch for news-and-events here.

Diseases

Genetic and Rare Diseases Information Center (GARD)

Erdheim-Chester disease


Other Names for this Disease
  • ECD
  • Erdheim Chester disease
  • Lipoid granulomatosis
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Research

Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Erdheim-Chester disease. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.

Patient Registry

  • The Histiocytosis Association of America has created the Erdheim-Chester Disease (ECD) Registry to ease the difficulty in the diagnosis and treatment of ECD. For more information about this Registry, contact:

    Christine Toughill, Outreach Coordinator
    Histiocytosis Association of America
    332 North Broadway
    Pitman, NJ 08071
    Phone: (856) 589-6606
    Fax: (856) 589-6614
    Email: christinetoughill@histio.org 

Other Names for this Disease
  • ECD
  • Erdheim Chester disease
  • Lipoid granulomatosis
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.