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Diseases

Genetic and Rare Diseases Information Center (GARD)

Fibrous dysplasia


Other Names for this Disease
  • Fibrous dysplasia of bone
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Treatment

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How might fibrous dysplasia be treated?

Unfortunately, there is no cure for fibrous dysplasia.[1][2] Treatment depends on the symptoms that develop. Fractures often require surgery, but can sometimes be treated with casting or splints.[1][3]] Surgery is most appropriate in cases where fractures are likely to occur, or where bones have become misshapen. Surgery may also be used to relieve pain. Medications known as bisphosphonates are also used to relieve bone pain.[1][3][4] Other healthy strategies such as physical activity and adequate intake of calcium, phosphorus, and vitamin D are also encouraged.[[1] 

Radiation therapy is not recommended for patients with fibrous dysplasia because it is associated with an increased risk of cancerous transformation.[1][3][4] Careful, long-term follow-up to monitor fibrous dysplasia is advised.
Last updated: 4/4/2016

References
  1. Fibrous Dysplasia Overview. NIH Osteoporosis and Related Bone Diseases National Resource Center. June 2015; http://www.niams.nih.gov/Health_Info/Bone/Additional_Bone_Topics/fibrous_dysplasia.asp.
  2. Kaneshiro NK, Zieve D. Fibrous dysplasia. MedlinePlus. December 4, 2013; http://www.nlm.nih.gov/medlineplus/ency/article/001234.htm.
  3. Fibrous Dysplasia in Children. Boston Children's Hospital. http://www.childrenshospital.org/conditions-and-treatments/conditions/fibrous-dysplasia. Accessed 4/4/2016.
  4. Fibrous Dysplasia. MayoClinic.com. July 8, 2014; http://www.mayoclinic.org/diseases-conditions/fibrous-dysplasia/basics/symptoms/con-20032196?p=1.


Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Fibrous dysplasia. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
  • Orphanet lists European clinical trials, research studies, and patient registries enrolling people with this condition. 
Other Names for this Disease
  • Fibrous dysplasia of bone
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.