Other Names for this Disease
- Fibrous dysplasia of bone
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Unfortunately, there is no cure for fibrous dysplasia. Treatment of fibrous dysplasia depends on the symptoms that develop. Surgery can often treat broken bones or significant bone malformations, though problems can recur and multiple procedures may be needed. A group of medications known as bisphosphonates has been shown to relieve bone pain in both adults and children. In adults only, these medications have also been shown to strengthen normal bone by preventing it from being replaced by weaker tissues or by increasing the thickness of the bone (density). These medications have not been shown to prevent fractures or bone malformations. Calcium and vitamin D supplements may also be considered to help promote bone health. Radiotherapy is not recommended because it is associated with an increased risk of fibrous dysplasia becoming cancerous. Careful, long-term follow-up to monitor fibrous dysplasia is advised, particularly during pregnancy because the lesions may progress more rapidly during this period.
Last updated: 8/25/2011
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- Finding Treatment Information - A video developed by GARD Information Specialists that explains how you can find information about treatment for a rare disease.