Other Names for this Disease
- Friedreich's ataxia
- Spinocerebellar ataxia, Friedreich
- Hereditary spinal sclerosis
- Hereditary spinal ataxia
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- ClinicalTrials.gov lists trials that are studying or have studied Friedreich ataxia. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- The Collaborative Clinical Research Network in Friedreich's Ataxia (CCRN in FA) is an international network of clinical research centers that work together to advance treatments and clinical care for individuals with Friedreich ataxia. Patients can contact the nearest center to learn about the studies and clinical services being offered.
- The Research Portfolio Online Reporting Tool (RePORT) provides access to reports, data, and analyses of research activities at the National Institutes of Health (NIH), including information on NIH expenditures and the results of NIH-supported research. Although these projects may not conduct studies on humans, you may want to contact the investigators to learn more. To search for studies, enter the disease name in the "Text Search" box. Then click "Submit Query".
- Coordination of Rare Diseases at Sanford (CoRDS) hosts a specific registry for patients with ataxia in partnership with the National Ataxia Foundation. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access.
- Friedreich's Ataxia Research Alliance (FARA) has a registry where patients can provide demographic and clinical information. People who register will be informed about opportunities to participate in clinical research studies and kept up-to-date on the progress of clinical trials.