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Diseases

Genetic and Rare Diseases Information Center (GARD)

Hay-Wells syndrome


Other Names for this Disease
  • AEC syndrome
  • Ankyloblepharon - ectodermal defects - cleft lip/palate
  • Ankyloblepharon ectodermal defects cleft lip/palate
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Cleft Palate Foundation
    1504 East Franklin Street, Suite 102
    Chapel Hill, NC 27514-2820
    Toll-free: 800-242-5338
    Telephone: 919-933-9044
    Fax: 919-933-9604
    E-mail: info@cleftline.org
    Website: http://www.cleftline.org/

  • National Foundation for Ectodermal Dysplasias
    6 Executive Drive
    Suite 2
    Fairview Heights, IL 62258-1360
    Telephone: 618-566-2020
    Fax: 618-566-4718
    E-mail: info@nfed.org
    Website: http://nfed.org/

Social Networking Websites

  • DNAandU.org is a Web site and blog¬†that collects¬†firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • AEC syndrome
  • Ankyloblepharon - ectodermal defects - cleft lip/palate
  • Ankyloblepharon ectodermal defects cleft lip/palate
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.