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Diseases

Genetic and Rare Diseases Information Center (GARD)

Hemophagocytic lymphohistiocytosis


Other Names for this Disease
  • Familial erythrophagocytic lymphohistiocytosis
  • Familial hemophagocytic lymphohistiocytosis
  • Familial histiocytic reticulosis
  • Familial HLH
  • FHL
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Histiocytosis Association of America
    332 North Broadway
    Pitman, NJ 08071
    Toll-free: 800-548-2758
    Telephone: 856-589-6606
    Fax: 856-589-6614
    Website: http://www.histio.org/

  • Histiocytosis Association of Canada
    Box 29095
    Okanagan Mission RPO
    Kelowna, B.C.
    V1W 4A7
    Canada
    Telephone: 250-764-6104
    E-mail: histio.canada@shaw.ca
    Website: http://www.histiocytosis.ca

Social Networking Websites

  • DNAandU.org is a Web site and blog¬†that collects¬†firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • Familial erythrophagocytic lymphohistiocytosis
  • Familial hemophagocytic lymphohistiocytosis
  • Familial histiocytic reticulosis
  • Familial HLH
  • FHL
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.