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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Hemophagocytic lymphohistiocytosis

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Other Names for this Disease
  • Familial erythrophagocytic lymphohistiocytosis
  • Familial hemophagocytic lymphohistiocytosis
  • Familial histiocytic reticulosis
  • Familial HLH
  • FHL
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Your Questions Answered


4 question(s) from the public on this disease have been answered. Submit a new question.
  • My daughter has HLH. Can HLH cause a brain injury? How does HLH relate to these types of injuries? If you could send me information on how HLH affects the brain, and is there chance of recovery when this happens. Thank you for your time. Click here for answer

  • Can you elaborate on some the causes of this disease in adults? Specifically, what triggers HLH and what is the general mortality rate? Click here for answer

  • My granddaughter had familial hemophagocytic lymphohistiocytosis when she was 8 months old. Can her brothers also develop this disease? I have noticed that both of the boys have had skin problems but the older one, now 13, has developed asthma and unexplained headaches. My granddaughter received a BMT from the 2nd born who is now 11 years old. Is there any testing we can have done to check the boys for the presence or absence of the disease? Click here for answer

  • What is HLH and what are the symptoms of this condition? Click here for answer

Other Names for this Disease
  • Familial erythrophagocytic lymphohistiocytosis
  • Familial hemophagocytic lymphohistiocytosis
  • Familial histiocytic reticulosis
  • Familial HLH
  • FHL
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.