Hypocomplementemic urticarial vasculitis syndrome
News & Events
ORDR Co-Sponsored Conferences
Personalized Medicine: Novel Biologic Therapies for Rare Eosinophilic Disorders, Tuesday, July 14, 2015
Location: Chicago, IL
Description: <p><span style="font-size: 11pt;">The short-term goals of the workshop are: 1) to bring together a multidisciplinary group of clinician-scientists with expertise in rare eosinophilic disorders to discuss issues related to improved patient care and clinical trial design, and 2) to continue to foster collaborative relationships between multidisciplinary clinical and basic science researchers interested in eosinophilic disorders. It is anticipated that the findings from this workshop will lead to a high impact publication addressing the role of personalized medicine in rare eosinophilic disorders and to improved design of planned multicenter clinical trials to assess the safety and efficacy of novel agents for the treatment of these disorders. </span></p>
The Spectrum of Caregiving and Palliative Care in Rare Diseases, Tuesday, June 09, 2015
Location: Building 31, 6C, Room 6, Bethesda, MD
Description: The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.
American Society of Gene & Cell Therapy (ASGCT) 18th Annual Meeting, Wednesday, May 13, 2015 - Saturday, May 16, 2015
Location: New Orleans, LA
Description: From our plenary lectures, this year to be given by Drs. Steven Rosenberg and Anthony Atala, to our 19 scientific symposia featuring invited speakers from across our discipline, to our nightly abstract poster receptions, where the majority of the over 700 abstracts submitted to the Annual Meeting are presented, the ASGCT Annual Meeting is certain to be the premiere scientific meeting in our field.
RDCRN 3rd Conference on Clinical Research for Rare Diseases, Tuesday, October 02, 2012
Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD
Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.
VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , Thursday, March 18, 2010 - Saturday, March 20, 2010
Location: Palais Rouge Convention Center, Palermo, Buenos Aires, Argentina
Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.
Workshop on Systemic Vasculitis: Future Research Directions, Monday, September 15, 1997
Location: NIH Campus, Bethesda, MD
- All Star Vasculitis Patient Symposium
July 30, 2010 - August 1, 2010
Location: Westin Long Beach Hotel in Long Beach, California
Description: Topics will cover all the types of vasculitis and will concentrate on the advances in medical treatments, research, and quality of life of patients. The meeting attracts vasculitis patients, family members, and medical vasculitis experts in the world.