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Diseases

Genetic and Rare Diseases Information Center (GARD)

Kikuchi disease


Other Names for this Disease
  • Kikuchi necrotizing lymphadenitis
  • Nosocomial Kikuchi's disease
  • Kikuchi's disease
  • Kikuchi-Fujimoto's disease
  • Histiocytic necrotising lymphadenitis
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Your Question

I was diagnosed with Kikuchi's disease a number of years ago. I had a lump on the side of my neck that kept on getting bigger. An ear nose and throat specialist did surgery to remove it. Biopsy confirmed that it was Kikuchi's disease. The ear nose and throat specialist informed me that I would have these lumps throughout my body for the rest of my life. Is this true? According to what I have been reading online it is supposed to go away after just a few months? I have a new lump on the other side of my neck now that has been getting bigger and it hurts. I had an MRI done and they said that it is only 1 cm wide on the inside but on the outside it was 5cm by 6cm. Do you think that I should have this removed?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

Once a person is diagnosed with Kikuchi disease, do the lumps persist and/or tend to recur?

The swollen lymph nodes associated with Kikuchi disease generally resolve within one to four months, with or without treatment. Although the condition may recur in approximately 3-4% of people, this is not characteristic for the condition. Occasionally Kikuchi disease proceeds (sometimes by years) a diagnosis of systemic lupus erythematous. As a result, long-term follow-up of people with Kikuchi disease is advised.[1][2]
Last updated: 3/18/2016

Is surgery typically advised for the removal of painful Kikuchi disease-related lumps?

While there is very limited information regarding Kikuchi disease treatment, surgery is usually not advised since the condition tends to resolve on its own. Certain medications may be available to help manage pain and other symptoms. For example, nonsteroidal anti-inflammatory drugs (NSAIDs) may be used to ease lymph node tenderness and fever. The use of corticosteroids has been recommended in severe cases.[1][2]

To learn more about your treatment options, we recommend that you speak with a healthcare provider.
Last updated: 3/18/2016

References
Other Names for this Disease
  • Kikuchi necrotizing lymphadenitis
  • Nosocomial Kikuchi's disease
  • Kikuchi's disease
  • Kikuchi-Fujimoto's disease
  • Histiocytic necrotising lymphadenitis
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.