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Diseases

Genetic and Rare Diseases Information Center (GARD)

Bardet-Biedl syndrome


Other Names for this Disease
  • BBS
  • Biedl-Bardet Syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Your Question

My question is about a student with Bardet-Biedel syndrome who has behavior problems. Is this common? What should we do if the behavior problems continue?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

Are behavioral problems common in people with Bardet-Biedl syndrome?

Behavioral problems have been reported in some people with Bardet-Biedl syndrome (BBS). The types of problems vary for each person but may include:

  • Depression
  • Throwing temper tantrums
  • Misreading social cues like body language and expressions
  • Obsessive behavior 
  • Not paying attention
  • Preferring a strict routine
Some children have features of autism, but they usually do not meet the criteria for diagnosis.[1][2]
Last updated: 10/2/2015

How can we manage the behavioral problems associated with Bardet-Biedl syndrome?

Managing the behavior problems of Bardet-Biedl syndrome depends on which issues are present in each person. Children with this syndrome should have a developmental assessment or educational evaluation to develop a personalized plan.[3] Early intervention is important so that children reach their highest potential.[4]
Last updated: 10/2/2015

References
Other Names for this Disease
  • BBS
  • Biedl-Bardet Syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.