National Ataxia Foundation
2600 Fernbrook Lane
Telephone: 763-553-0020 Fax: 763-553-0167 E-mail: firstname.lastname@example.org Website: http://www.ataxia.org
National Organization of Disorders of the Corpus Callosum
18032-C Lemon Drive
Telephone: 714-747-0063 Fax: 714-693-0808 E-mail: email@example.com Website: http://www.nodcc.org
Social Networking Websites
DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.