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Diseases

Genetic and Rare Diseases Information Center (GARD)

Marden-Walker syndrome


Other Names for this Disease
  • MWS
  • Connective tissue disorder Marden Walker type
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Treatment

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How might Marden-Walker syndrome be treated?

Very little information is available regarding the treatment of Marden-Walker syndrome. In general, treatment is symptomatic, with a multidisciplinary approach.[1] The team of providers may include a regular pediatrician, a geneticist, a neurologist, an orthopedist and/or a physical medicine specialist. Special diets and feeding techniques may be of benefit. Early childhood intervention services may help with developmental problems. Other treatments are dependent upon the specific symptoms present in each patient.[2] 
Last updated: 5/27/2011

References
  1. Ponsot G. Marden-Walker syndrome. Orphanet. 2003; http://www.orpha.net/data/patho/GB/uk-MardenWalker.pdf. Accessed 5/27/2011.
  2. 5. Marden-Walker Syndrome. Madison's Foundation. 2004; http://www.madisonsfoundation.org/index.php/component/option,com_mpower/diseaseID,487/. Accessed 5/27/2011.


GARD Video Tutorial

  • Finding Treatment Information - A video developed by GARD Information Specialists that explains how you can find information about treatment for a rare disease.

    Finding Treatment Information

Clinical Trials & Research for this Disease

  • The Centers for Mendelian Genomics program is working to discover the causes of rare genetic disorders. For more information about applying to the research study, please visit their website.
Other Names for this Disease
  • MWS
  • Connective tissue disorder Marden Walker type
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.