Hereditary multiple osteochondromas
- Hereditary multiple exostoses
- Hereditary multiple exostosis
- Multiple exostoses
- Bessel-Hagen disease
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ORDR Co-Sponsored Conferences
2016 Rare Disease Day at NIH, Monday, February 29, 2016
Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.
Fourth International MHE Research Conference, Thursday, November 01, 2012 - Sunday, November 04, 2012
Location: Philadelphia, PA
Description: The goals of the conference are: 1)-to provide a forum to share the most recent and unpublished findings in these areas amongst the major laboratories working on MHE; 2)-to share this knowledge with experts in closely related fields who can provide critical input and fresh perspectives, and be inspired to work directly on this debilitating and potential serious pediatric disorder individually or in collaboration; 3)-to develop an understanding of the medical and clinical complexity of MHE as thoroughly as possible. MHE children also have additional and potentially debilitating pathologies. This requires the concerted effort of experts in orthopaedics, genetics, enzymology, glycobiology and developmental and cell biology; and, 4)-to share insights gained in animal model systems and in MHE human specimens.
The Third Multiple Hereditary Exostoses (MHE) Research Conference, Thursday, October 29, 2009 - Sunday, November 01, 2009
Location: Four Points, Sheraton Boston Logan Airport, Boston, MA
Description: This goals of this conference were to promote the exchange of the most current information regarding MHE and the collaboration and synergy among laboratories studying this disease. These goals were accomplished by bringing together world experts in the fields of orthopedics, human genetics, developmental biology, glycobiology, and related human bone diseases and providing them with a highly focused forum to cultivate new ideas and cross-discipline collaborations.