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Diseases

Genetic and Rare Diseases Information Center (GARD)

Mucopolysaccharidosis type IIIB


Other Names for this Disease
  • Mucopoly-saccharidosis type 3B
  • Sanfilippo syndrome B
  • N-acetyl-alpha-d-glucosaminidase deficiency
  • MPS IIIB
  • MPS 3B
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Your Question

My son has MPS IIIB, and I would like to know if there is any current research or clinical trials for this condition. This seems to be a rare disease that is also ‘rare’ in research and so it has been very difficult to obtain any treatment for my son. Are you able to help?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

Are there any research studies or clinical trials for mucopolysaccharidosis type IIIB (MPS IIIB)?

There may be several research studies involving various aspects of MPS IIIB. To learn more about how to find and participate in a research study, clinical trial, or patient registry, please review the information on our "Get Involved in Research" page.

Organizations supporting MPS may additionally be involved in coordinating research and/or may be aware of research opportunities. To view a list of organizations supporting MPS IIIB, click here
Last updated: 7/6/2016
Other Names for this Disease
  • Mucopoly-saccharidosis type 3B
  • Sanfilippo syndrome B
  • N-acetyl-alpha-d-glucosaminidase deficiency
  • MPS IIIB
  • MPS 3B
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.