Other Names for this Disease
- Hereditary lymphedema
- Congenital hereditary lymphedema
- Early onset lymphedema
- Hereditary lymphedema 1
- Primary congenital lymphedema
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- ClinicalTrials.gov lists trials that are studying or have studied Milroy disease. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- The Lymphatic Research Foundation is establishing a The National Lymphatic Disease Patient Registry which will provide researchers with fresh tissue, cell samples, and clinical data to study the development and functioning of the lymphatic system in order to develop improved treatments and find a cure for lymphatic diseases, lymphedema, and related disorders. Click on the link above to learn more about how you can participate in the Patient Registry.