Children Living with Inherited Metabolic Diseases (CLIMB)
176 Nantwich Road
Crewe CW2 6BG
Toll-free: 0800 652 3181 Telephone: 0845 241 2173 E-mail: email@example.com Website: http://www.climb.org.uk
National Urea Cycle Disorders Foundation
75 South Grand Avenue
Telephone: 800-38-NUCDF (800-386-8233) Fax: 818-790-2460 E-mail: firstname.lastname@example.org Website: http://www.nucdf.org
Social Networking Websites
DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.