Other Names for this Disease
- Primary hypertrophic osteoarthropathy
- Idiopathic hypertrophic osteoarthropathy
- Touraine Solente Gole syndrome
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Your QuestionI was diagnosed by several doctors with different diagnoses: cancer, osteomyelitis and several other bone diseases. The last doctor gave me the diagnosis of Touraine Solente Gole Syndrome. The doctor told me that I will not die, but this disease has no treatment and that I must support the pain. I want to know if there is treatment for this disease or what could make my pain go away.
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Treatment for pachydermoperiostosis mainly focuses on the specific signs and symptoms present in each individual. Bone and joint pain may be treated with nonsteroidal anti-inflammatory drugs (NSAIDs), corticosteroids or colchicine. A vagotomy, a surgical procedure in which certain branches of the vagus nerve are cut, may in some instances improve joint pain and swelling. Skin-related symptoms may be treated with retinoids. Plastic surgery may be performed to improve facial appearance in some individuals. Surgery may also be performed to treat clubbing of fingers and/or toes.
Last updated: 7/12/2016
- Lindor NM. Pachydermoperiostosis. National Organization for Rare Disorders (NORD). 2008; http://rarediseases.org/rare-diseases/pachydermoperiostosis/.
- Girschick H. Pachydermoperiostosis. Orphanet. January 2011; http://www.orpha.net/consor/cgi-bin/OC_Exp.php?lng=EN&Expert=2796.