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- Paragangliomas familial 1
- SDHD-Related Hereditary Paraganglioma-Pheochromocytoma Syndrome (Paragangliomas 1)
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ORDR Co-Sponsored Conferences
2016 Rare Disease Day at NIH, Monday, February 29, 2016
Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.
The Tenth International Catecholamine Symposium (XICS), Sunday, September 09, 2012 - Thursday, September 13, 2012
Location: Ailomar Conference Grounds, Pacific Grove, CA
Description: The Tenth International Catecholamine Symposium (XICS) will emphasize integration of basic science with clinical pathophysiology, by a program centering on disease-oriented research about catecholamine systems. The goals of the XICS are to: disseminate the latest important basic scientific, disease-oriented, and patient-oriented medical advances about catecholamines; foster interactions among basic scientists, disease-oriented researchers, and clinical investigators, via common interests in catecholamine systems; emphasize integrative approaches for understanding the roles of catecholamines in cellular, organ, systemic, and organismic integrity; comprehensively update research on catecholamines in rare and common disorders of development in pediatrics, regulation in adults, and degeneration in the elderly; and foster synthesis of molecular genetics with integrative physiology and pathophysiology, based on evolving understanding of catecholamine systems.
NCI Summit on Carcinoids and Neuroendocrine Tumors, Wednesday, September 12, 2007 - Thursday, September 13, 2007
Location: Rockville, MD
Description: The goals of this summit were to assess the current status of neuroendocrine tumor biology, diagnosis, and treatment and to develop a comprehensive set of recommendations that address the major barriers to early diagnosis and treatment. There are plans to submit a synopsis of this summit and the list of recommendations for publication in a cancer journal and to members of the U.S. Congress. It was anticipated that this summit would increase general awareness of this disease, stimulate scientific interest in this under-represented area, and potentially open up new avenues of funding.