Paroxysmal nocturnal hemoglobinuria
- Marchiafava-Micheli disease
On this page
- Finding Treatment Information - A video developed by GARD Information Specialists that explains how you can find information about treatment for a rare disease.
- Orphanet Emergency Guidelines is an article which is expert-authored and peer-reviewed that is intended to guide health care professionals in emergency situations involving this condition.
- ClinicalTrials.gov lists trials that are studying or have studied Paroxysmal nocturnal hemoglobinuria. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
The Rare Thrombotic Diseases Consortium aims to improve the lives of people with antiphospholipid antibody syndromes, heparin-induced thrombocytopenia, paroxysmal nocturnal hemoglobinuria, catastrophic antiphospholipid antibody syndrome (thrombotic storm), and thrombotic thrombocytopenic purpura (TTP) through research.
For more information, please contact:
Hemostasis and Thrombosis Research Center
Duke University Health System
P.O. Box 3422 DUMC
315 Trent Dr. Rm 273
Durham, NC 27710
(Alexion Pharmaceuticals, Inc.)
The FDA has approved this product to be used in this manner.
|Treatment of paroxysmal nocturnal hemoglobinuria to reduce hemolysis|
|More Information about this product||Drug Information Portal|