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Diseases

Genetic and Rare Diseases Information Center (GARD)

Paroxysmal nocturnal hemoglobinuria


Other Names for this Disease
  • PNH
  • Marchiafava-Micheli disease
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

News & Events


News


ORDR Co-Sponsored Conferences

  • 2016 Rare Disease Day at NIH, Monday, February 29, 2016
    Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
    Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.

  • Bone Marrow Failure Disease Scientific Symposium 2012: Building a Collaborative Research Community That Saves Lives, Thursday, March 22, 2012 - Friday, March 23, 2012
    Location: Hyatt Regency Bethesda, , Bethesda, MD
    Description: This Symposium will bring together physicians treating these diseases and laboratory researchers studying the immunology and cell biology of bone marrow failure to discuss current areas of controversy, share recent research results, and propose recommendations for the highest priority directions for basic and clinical research needed to advance the field. The format will consist of six presentation sessions, with time at the end of each session for questions and discussions, as well as for capture of recommendations for future research. The two days of the conference will also include poster and discussion sessions and networking opportunities.

Other Names for this Disease
  • PNH
  • Marchiafava-Micheli disease
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.