European Network for Rare and Congenital Anaemias (ENERCA)
University of Barcelona
Red Cell Pathology Unit
C/Villarroel, 170 · 08036
Telephone: (34) 93 451 5950 Fax: (34) 93 227 1764 E-mail: firstname.lastname@example.org Website: http://www.enerca.org
United Mitochondrial Disease Foundation
8085 Saltsburg Road, Suite 201
Toll-free: 888-317-8633 Telephone: 412-793-8077 Fax: 412-793-6477 E-mail: email@example.com Website: http://www.umdf.org
Social Networking Websites
DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.