Pediatric T-cell leukemia
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ORDR Co-Sponsored Conferences
2016 Rare Disease Day at NIH, Monday, February 29, 2016
Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.
Advancing Symptom Clusters Research on Rare Cancers, Wednesday, June 17, 2015
Location: NIH Neuroscience Building, Bethesda, MD
Description: <p>It is intended that the in-depth, interdisciplinary dialogue of this expert working group will formulate an emerging consensus on a working definition of symptom clusters and, specific gaps and opportunities that provide a foundation for a transformative strategic blueprint to guide future symptom cluster research in rare cancers. In addition, it is anticipated that workshop proceedings will inform a funding opportunity announcement.</p>
Ethical and Regulatory Aspects of the Procurement of Cell Products from Healthy Minors on Research Protocols: Protecting Minors in the Context of Potentially Life-Saving Clinical Research, Friday, March 13, 2015
Location: NIH Natcher Conference Center, Bethesda, MD
Description: <p>The primary goal is to establish a set of guidelines to use when evaluating the role of a minor hematopoietic stem cell donor on a research protocol, as it relates to the Federal regulations governing pediatric research.<span> </span>Secondary goals include identifying areas of controversy in the context of minor donors and federal regulations and design actions plans to potentially implement change in the federal regulations.</p>
Overcoming Barriers to International Clinical Trials for Rare Cancers , Friday, December 10, 2010
Location: Bethesda, Maryland
Description: The goals of this conference were to introduce key institutional players to the topic of international clinical trials in rare cancers and to establish an ongoing dialogue. Participants left the meeting with a set of specific priorities that need to be enacted to promote these trials. The meeting promoted consensus on the way that resources are prioritized to address rare cancers. Participants were asked to convey the content of the meeting to their constituencies and to follow up with pilot concepts.
Immunotherapy in Pediatric Oncology: Progress and Challenges, Monday, October 11, 2010 - Tuesday, October 12, 2010
Location: Texas Children’s Hospital/Baylor College of Medicine, Houston, Texas
Description: Goals of this conference were to (1) enhance collaboration and cross-fertilization of ideas and approaches among this widely dispersed community; (2) provide opportunities for young immunotherapists to meet the “giants” in the field and thus enhance their careers; (3) provide the seeds for a collaborative network that would eventually represent a consortium of individuals working in this field, albeit focused on different pediatric tumors; and (4) bring together the community to address regulatory challenges in developing cell products for immune-based therapy, which will improve the efficiency of developing protocols that are acceptable to the Food and Drug Administration (FDA).