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Diseases

Genetic and Rare Diseases Information Center (GARD)

Pelvic lipomatosis


Other Names for this Disease
  • Excess of mature unencapsulated fatty tissue in the pelvis
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Treatment

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Is weight-loss helpful in the management of pelvic lipomatosis?

To date, weight-loss has not been shown to be effective in managing pelvic lipomatosis. Treatment options for pelvic lipomatosis may include watchful waiting or surgery. Unfortunately, less invasive treatments such as antibiotics, steroids, and radiation therapy are not helpful.[1] 

Currently there are no well established treatment guidelines for pelvic lipomatosis. It can likewise be difficult to find doctors who have clinical experience with this rare condition. The following organization has a medical advisory board, physician locator services, and patient networks which may help you find doctors who are experienced in treating pelvic lipomatosis. While the group does not offer information on pelvic lipomatosis currently, they do advocate for all people with rare fat disorders.

Fat Disorders Research Society
2305 Robincrest Ln
Glenview, IL 60025
E-mail: http://www.fatdisorders.org/contact-fdrs/
Website: http://www.fatdisorders.org
Last updated: 2/16/2016

References
  1. Ali A, Swain S, Manoharan M. Pelvic lipomatosis: Bladder sparing extirpation of pelvic mass to relieve bladder storage dysfunction symptoms and pelvic pain. Cent European J Urol. 2014; 67(3):287-8. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4165674/#CIT0001. Accessed 2/16/2016.


GARD Video Tutorial

  • Finding Treatment Information - A video developed by GARD Information Specialists that explains how you can find information about treatment for a rare disease.

    Finding Treatment Information
Other Names for this Disease
  • Excess of mature unencapsulated fatty tissue in the pelvis
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.