Your browser does not support javascript:   Search for gard hereSearch for news-and-events here.

Diseases

Genetic and Rare Diseases Information Center (GARD)

Severe combined immunodeficiency


Other Names for this Disease
  • SCID
  • Bubble boy disease
  • ADA deficiency
  • Severe combined immunodeficiency due to adenosine deaminase deficiency
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Research

Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Severe combined immunodeficiency. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.

Patient Registry

  • Primary Immunodeficiency Diseases Registry (PIDR)
    Toll-free: 1-800-296-4433
    Web site: Primary Immunodeficiency Registry
  • The Primary Immune Deficiency Treatment Consortium (PIDTC) is a team of doctors, nurses, research coordinators, and research labs throughout the U.S., working together to improve the lives of people with severe combined immunodeficiency, Wiskott-Aldrich syndrome, and chronic granulomatous disease through research. The Primary Immune Deficiency Treatment Consortium (PIDTC) has a registry for patients who wish to be contacted about clinical research opportunities.
Other Names for this Disease
  • SCID
  • Bubble boy disease
  • ADA deficiency
  • Severe combined immunodeficiency due to adenosine deaminase deficiency
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.