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Diseases

Genetic and Rare Diseases Information Center (GARD)

Sezary syndrome


Other Names for this Disease
  • Sézary lymphoma
  • Sézary syndrome
  • Sezary's lymphoma
Related Diseases
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Your Question

Can Sezary syndrome be cured?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

Can Sezary syndrome be cured?

Sezary syndrome is difficult to cure. Treatment is usually palliative, with the intention of relief of symptoms and improvement in the quality of life. Patients may live many years with the disease.[1]
Last updated: 8/3/2015

How might Sezary syndrome be treated?

In general, there are six different treatment options available to people with Sezary syndrome. These include:[1]
  • Photodynamic therapy
  • Radiation therapy
  • Chemotherapy
  • Other drug therapy (i.e. topical steriods, retinoids)
  • Biologic therapy
  • Targeted therapy

To learn more about the treatment and management of Sezary syndrome, including specific information about each of the treatments listed above, please visit the National Cancer Institute's Web site. Simply click on the link to access this resource.
Last updated: 7/30/2015

How can I learn about research opportunities for individuals with Sezary syndrome?

The U.S. National Institutes of Health, through the National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. Currently, there are several clinical trials are identified as enrolling individuals with Sezary syndrome. To find these trials, click on the link above. After you click on a study, review its "eligibility" criteria to determine its appropriateness. Use the study’s contact information to learn more. Check this site often for regular updates.

You can also contact the Patient Recruitment and Public Liaison (PRPL) Office at the National Institutes of Health (NIH). We recommend calling 1-800-411-1222 to speak with a specialist, who can help you determine if you are eligible for any clinical trials. If you are located outside the United States, and would like to be contacted via telephone, you will need to contact PRPL and provide your telephone number in full, including area code and international dialing prefix.

Patient Recruitment and Public Liaison Office
NIH Clinical Center
Bethesda, Maryland 20892-2655
Toll-free: 1-800-411-1222
Fax: 301-480-9793
E-mail: prpl@mail.cc.nih.gov
Web site: http://clinicalcenter.nih.gov

You can find information about participating in a clinical trial as well as learn about resources for travel and lodging assistance, through the Get Involved in Research section of our Web site.
Last updated: 8/3/2015

References
Other Names for this Disease
  • Sézary lymphoma
  • Sézary syndrome
  • Sezary's lymphoma
Related Diseases
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.