Your browser does not support javascript:   Search for gard hereSearch for news-and-events here.

Diseases

Genetic and Rare Diseases Information Center (GARD)

Sturge-Weber syndrome


Other Names for this Disease
  • SWS
  • Sturge Weber syndrome
  • Encephalotrigeminal angiomatosis
  • Fourth phacomatosis
  • Meningeal capillary angiomatosis
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Research

Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Sturge-Weber syndrome. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.

Patient Registry

  • The Brain Vascular Malformation Consortium is a team of doctors, nurses, research coordinators, and research labs throughout the U.S., working together to improve the lives of people with familial cavernous malformations, Sturge-Weber syndrome, hereditary hemorrhagic telangiectasia through research. The Brain Vascular Malformation Consortium has a registry for patients who wish to be contacted about clinical research opportunities.

    For more information on the registry see: http://rarediseasesnetwork.epi.usf.edu/registry/index.htm
Other Names for this Disease
  • SWS
  • Sturge Weber syndrome
  • Encephalotrigeminal angiomatosis
  • Fourth phacomatosis
  • Meningeal capillary angiomatosis
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.