Other Names for this Disease
- Retinocochleocerebral vasculopathy
- SICRET (small infarction of cochlear, retinal, and encephalic tissue) syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.
On this page
- ClinicalTrials.gov lists trials that are studying or have studied Susac syndrome. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- The Research Portfolio Online Reporting Tool (RePORT) provides access to reports, data, and analyses of research activities at the National Institutes of Health (NIH), including information on NIH expenditures and the results of NIH-supported research. Although these projects may not conduct studies on humans, you may want to contact the investigators to learn more. Currently there is a research study titled Endothelial-Reactive Antibodies: A diagnostic test for Susac's syndrome. Click on the study title for further information on the study.
The International Collaborative Study of Susac Syndrome
Crile Bldg, Desk A111
c/o Margaret LaPlaca
9500 Euclid Ave.
Calgary, Alberta T3B 6A8
Cleveland, OH 44195
Telephone: +1- 216-445-6626