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Diseases

Genetic and Rare Diseases Information Center (GARD)

Thalassemia


Organizations

Organizations Supporting this Disease

  • Cooley's Anemia Foundation
    330 Seventh Avenue, Suite 200
    New York, NY 10001
    Telephone: 800-522-7222
    Fax: 212-279-5999
    E-mail: info@cooleyanemia.org
    Website: http://www.cooleysanemia.org

  • European Network for Rare and Congenital Anaemias (ENERCA)
    University of Barcelona
    Red Cell Pathology Unit
    C/Villarroel, 170 · 08036
    Barcelona
    Spain
    Telephone: (34) 93 451 5950
    Fax: (34) 93 227 1764
    E-mail: enerca@enerca.org
    Website: http://www.enerca.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.