Your QuestionHow might pain caused by transverse myelitis be treated?
We have identified the following information that we hope you find helpful. If you still have questions, please contact us.
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The National Institutes of Health, through the National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. While no studies investigating new pain treatments in people with pain due to transverse myelitis specifically, there are a number of studies enrolling patients with pain due to spinal cord injury in general. To find these trials, click here.
You can also contact the Patient Recruitment and Public Liaison (PRPL) Office at the National Institutes of Health (NIH). We recommend calling the toll-free number listed below to speak with a specialist, who can help you determine if you are eligible for any clinical trials.
Patient Recruitment and Public Liaison Office (PRPL)
NIH Clinical Center
Bethesda, Maryland 20892-2655
Web site: http://clinicalcenter.nih.gov/
If you are interested in enrolling in a clinical trial, you can find helpful general information on clinical trials at the following ClinicalTrials.gov Web page.
A tutorial about clinical trials that can also help answer your questions can be found at the following link from the National Library of Medicine.
Resources on many charitable or special-fare flights to research and treatment sites and low-cost hospitality accommodations for outpatients and family members, as well as ambulance services, are listed on the Web site of the Office of Rare Diseases (ORD), part of the National Institutes of Health.
The following organizations are able to provide you with more information on this topic.
The Transverse Myelitis Center at Johns Hopkins University
Attn: Mary Brown
600 North Wolfe Street
Baltimore, MD 21287
Web site: http://hopkinsneuro.org/tm/what_we_do.cfm
Information on long-term care (including for pain): http://hopkinsneuro.org/tm/disease.cfm/condition/Transverse_Myelitis_Care--Long_Term
Tranverse Myelitis Association
1787 Sutter Parkway
Powell, OH 43065-8806
Web site: http://www.myelitis.org
American Chronic Pain Association (ACPA)
P.O. Box 850
Rocklin, CA 95677-0850
Web stie: http://www.theacpa.org
National Rehabilitation Information Center (NARIC)
4200 Forbes Boulevard Suite 202
Lanham, MD 20706-4829
Phone: 301-459-5900 or 301-459-5984
Web site: http://www.naric.com
- Transverse Myelitis Fact Sheet. National Institute of Neurological Disorders and Stroke (NINDS). June 24, 2015; http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm. Accessed 9/2/2015.
- Transverse Myelitis: Treatments and drugs. MayoClinic.com. January 4, 2007; http://www.mayoclinic.com/health/transverse-myelitis/DS00854/DSECTION=treatments-and-drugs. Accessed 8/15/2008.